2:40 p.m. - 3:40 p.m.
Supporting Family Caregivers Providing Complex Care: Paving A Multisector Path
In the current healthcare environment, family caregivers are often an afterthought, considered only during care transitions and discharge— not seen as valuable members of the healthcare team. Home Alone Revisited: Family Caregivers Providing Complex Care, a new report from AARP, marks a turning point
in our understanding of family caregiving. This close look at the family caregiving experience examines the extent and impact of performing medical/nursing tasks (wound care, preparing special diets, managing multiple medications), associated stress and worry, and differences in diverse populations across generations, gender and multicultural households. The findings and recommendations in Home Alone Revisited mark a turning point in our understanding of family caregiving. Join our panel as they discuss Home Alone Revisited report findings and shed light on the path ahead.
Executive Director, Family Caregiver Alliance,National Center on Caregiving
Kathleen Kelly is executive director of Family Caregiver Alliance, a
national nonprofit that provides direct caregiver services, public
policy development, research and public awareness regarding unpaid family
caregivers. She oversees the regional SF Bay Area Caregiver Resource Center providing
direct caregiver services, CA policy collaborations and the National Center on
Caregiving. Currently Kathleen is the Co-Investigator on use of digital service delivery
using FCA CareJourney across two pilot sites funded by the CA Department of Public
Health, Alzheimer’s Research Program. She sits on a variety of state and national
advisories such as the CA Task Force on Family Caregiving and the Home Alone
Director of Caregiving Projects
AARP Public Policy Institute
As the director of Caregiving Projects with the AARP Public Policy Institute, Rita Choula leads and provides content expertise on
internal and external family caregiving initiatives. Bridging policy to practice, much of
her work focuses on identifying and supporting the needs of multicultural family
caregivers through a multi-disciplinary approach that elevates the diversity of family
caregiving experiences. In collaboration with clinical experts and key stakeholders,
Rita develops programs and tools that enable healthcare professionals to better
recognize and support family caregivers across settings. Through the Home Alone
Alliance, she leads the development and production of easily-accessible videos that
provide family caregivers with the technical information and guidance necessary to
perform complex medical/nursing tasks.
Vice President, Post Acute Care Services
Kathleen Sullivan has over thirty years experience in the administration
of home and community-based services. Her current
responsibilities with Dignity Health include the operational oversight and implementation
of strategic initiatives for post acute care, chronic disease and oncology
programs throughout the central coast of California. Kathleen has been a pioneer at
Dignity Health in Telemonitoring innovation and in the development of programs and
services designed to support the family caregivers of medically fragile older adults.
Prior to joining Dignity Health, Kathleen was vice president, operations, for CliniShare,
Inc., a Home Care subsidiary of UniHealth in Los Angeles where she had both clinical
and operational responsibility for all programs.